Wealden Dementia Action Alliance was set up in May 2016 to help make our district more dementia friendly and raise the awareness amongst our residents and businesses.
With a lot of local support from various community groups, volunteers, businesses and many more we now have five local dementia forums across the district all making a difference in their community and raising the awareness of dementia. If you would like to be part of the alliance meetings or a local forum please contact us by emailing email@example.com
Watch our video for further information on how the Alliance is support the Wealden community.
Please also like and follow our Wealden Dementia Action Alliance Facebook page to get updates on the activities taking place across the district. We also have a weekly email which provides information on all of our forum meeting dates, current information and links to useful information. If you would like to sign up to this please email firstname.lastname@example.org.
Wealden Dementia Action Alliance Charter
Wealden Dementia Action Alliance have set up a charter for businesses and voluntary and community organisations to commit to working towards making Wealden dementia friendly.
Due to our current situation the Alliance will be doing this virtually. If you sign up to the charter you will receive a logo which you can promote on your online platforms.
Cuckoo Line Stores
What’s on in Hailsham
Local Dementia Forums and Activities
Please contact the team by emailing email@example.com for more information if you would like to be involved to any of the forums below:
The Community Cafe: ON HOLD
Pine Grove Pictures – Dementia friendly film afternoons were due to begin in March 2020, but due to the current situation we have put the films on hold.
Movies Make Memories – On hold
The screenings are held at Hailsham Pavilion Theatre on George Street, BN27 1AE. Starting at 2pm with the doors opening at 1.30pm. Tickets cost £3 and carers can enter free of charge.
Hailsham Memory cafe – On hold
Takes place at St Wilfrid’s Church Hall in Hailsham. Everyone is welcome. It will take place every second Thursday of the month, 2pm – 4pm. For more information please call 01323 443266. The cafe is funded by Hart Reade Solicitors and supported by Home Instead and Bowes House, Hailsham Citizens Advice and CPJ Field.
The Ninfield Health and Wellbeing group organise film screenings, indoor games and health walks in the village.
Ninfield Film Screenings – On hold
The films take place at Ninfield Memorial Hall, Ninfield, TN33 9EE. Doors open at 1.30pm, film to start at 2pm. The film is FREE but please book a seat. There will be a raffle and refreshments available.
For more information or to book your place at the next future film screening in Ninfield, please contact Jackie Langley on 01424 892422 or email firstname.lastname@example.org
Polegate Memory Café – On hold
Meet on the 1st Thursday of the month at Polegate Community Centre, Windsor Way, BN26 6QF. Everyone is welcome. The cafe is free with refreshments and an activity each month.
Sporting Memories – On hold
Groups are an opportunity for older sports fans to get together to talk sport. The group encourages participation and inclusion of all, including those living with memory problems. The aim is to promote physical and mental well being through reminiscing using sporting experiences of watching or playing – literally any sport! Thereby using sport as a means to try and combat loneliness and isolation, by giving the chance to boost confidence and make new friends. The groups meets every Wednesday 10am till 11.30am at Polegate Community Centre, Windsor Way, BN26 6QF
Polegate Film Club – On hold
Saturday Social – On hold
Supportive, safe and caring gathering for people living with dementia and other care needs, to come with their carers and family members, and socialise with others in a similar situation.
Join in the fun at Victoria Pavilion, Victoria Pleasure Ground, Uckfield, TN22 5DJ between 2pm – 4pm
For more information please call Margaret on 01825 760176 or Alison on 01825 605030
Five Ash Down Community Café – On hold
takes place the last Wednesday of every month at Hurstwood View Care Home, Five Ash Down 10am – 12noon. Free transport available within a 5 mile radius
The next Wadhurst Dementia forum will be confirmed as soon as possible at Wadhurst Manor. If you would like to come along and more information please contact us on 01323 443266
Wadhurst Community CafeMeet on the last Wednesday of every month at Wadhurst Manor, Station Road, Wadhurst 2.30pm – 4.30pm.
Contacts and Services for Carers
Care for the Carers
Care for the Carers is an independent charity and the Carers Centre for East Sussex. We have been supporting and representing unpaid carers in East Sussex since 1989.
Our team of staff and volunteers can provide free practical and emotional advice – face to face, by telephone, or online. We can put you in touch with other carers, and help you navigate the range of services available locally. We also run support groups, training and events across the county – whether you are interested in speaking up on important issues, or having some time out to relax or meet new people.
Care for the Carers represents carers and raises awareness of caring, working with local communities, organisations and service providers to build a carer friendly East Sussex.
For more information visit the Care for the Carers website.
DISC – Dementia Support
DISC Dementia Support provide the following services for carers:
- Weekly facilitated support groups over Zoom
- Regular carer information courses
- 7 day a week support service via telephone, email, Zoom, text etc
- Regular information services over Zoom
For more information, email DISC Dementia Support or call Louise on 07591 251005 or Emma on 07591 250988.
Friends against Scams
A National Trading Standards Scams Team initiative which aims to protect and prevent people from becoming victims of scams by empowering people to take a stand against scams. Take a look at their website for more information and how you can get involved.
If you or you know someone who has been scammed please contact Citizens Advice Consumer service – 03454 04 05 06
The Herbert Protocol
The initiative is named after George Herbert, a war veteran of the Normandy landings, who lived with dementia. He died whilst ‘missing’, trying to find his childhood home.
A form that carers, family or friends of a vulnerable person can fill in which is linked with Sussex Police.
It contains a list of information to help the police if the person goes missing, including:
- medication required
- mobile numbers
- places previously located
- a recent photograph
Keeping a completed form saves the worry of trying to recall the information during the stressful time of someone going missing. It also saves time for the police, allowing the search to start sooner.
When to fill in a form
Use your professional opinion as a carer or your knowledge as a family member to decide whether a person is at risk of going missing.
Hidden Disabilities Sunflower Lanyards
Wealden District Council has teamed up with Wealden Dementia Action Alliance to support a project to help people in Wealden feel more confident going into the community again.
The Hidden Disabilities Sunflower project helps those who have disabilities that are not immediately obvious to others. This could include people with learning difficulties, those living with dementia or poor mental health, as well as mobility, speech, visual or hearing impairments.
Wearing the sunflower lanyard discreetly indicates to others, including shop workers, members of the community, colleagues and health professionals that additional support, help or a little more time may be needed.
Hidden disabilities could also include asthma and other lung conditions as well as chronic illnesses such as renal failure, diabetes and sleep disorders, or indeed any illness that significantly impacts day to day life.
They affect each person in a different way, and can be painful, exhausting, and isolating. Without visible evidence of the hidden disability, it is frequently difficult for others to acknowledge the challenges faced and as a consequence, sympathy and understanding can often be in short supply.
There is no evidence required or qualifying list of hidden disabilities. If you have a hidden disability and feel that you would benefit from wearing a Hidden Disabilities Sunflower product, please do. The Hidden Disabilities Sunflower does not entitle you to anything other than identifying that you have a hidden disability and that you may need some assistance, help, or a little more time.
Lanyards are provided free of charge at the following locations. To get a lanyard for yourself, a family member or friend with a hidden disability, just pop in and ask.
- Forest Row Community Centre
- Crowborough Town Council offices
- Uckfield Civic Centre
- Polegate Town Council (please call 01323 488114 to arrange collection)
- Sussex Community Development Association, Hailsham
Alternatively, please call Wealden District Council Customer Services on 01323 443322 for further details or email email@example.com
Use Alzheimer’s Society dementia directory to find local support services and activities for people with dementia and their carers
Information for businesses
If you are part of a business and would like to know more about how to make your business more dementia friendly, download our Make your business dementia friendly
The Alzheimer’s society website also has a lot of information and resources for you to use to help your business becoming more dementia friendly.
Get involved in dementia research
Time for Dementia
Is a programme working with medical students and other health professionals. The students have the opportunity to get to know a person with dementia and their family carer outside the clinical setting. Families in the East Sussex area are needed to help with this programme further details including contact details can be found on the NHS Sussex Partnership website or view the Time for Dementia – Family recruitment video. If you are interested please email firstname.lastname@example.org
Look at important questions about why care is unequal and what this means for people with dementia in terms of their health, level of comfort and happiness – or ‘quality of life’ – and the cost of their care. They aim to explore and understand the answers to these questions:
- What are the differences in dementia care and who gets worse or better care?
- What aspects of dementia care lead to good and bad quality of life outcomes?
- How are outcomes for people with dementia affected by the cost of their care, when they are diagnosed, the amount of health or social care they get, and their life circumstances?
These answers will help improve care for people with dementia and their carers. By improving care we hope to improve quality of life outcomes as well.
For more information, or would like to be involved please visit their website