Wealden Dementia Action Alliance

Wealden Dementia Action Alliance was set up in May 2016 to help make our district more dementia friendly and raise the awareness amongst our residents and businesses.

With a lot of local support from various community groups, volunteers, businesses and many more we now have four local dementia forums across the district all making a difference in their community and raising the awareness of dementia. If you would like to be part of the alliance meetings or a local forum please contact us by emailing communitydevelopment@wealden.gov.uk 

Watch our video for further information on how the Alliance is support the Wealden community. 

Please also like and follow our Wealden Dementia Action Alliance Facebook page to get updates on the activities taking place across the district. We also have a weekly email which provides information on all of our forum meeting dates, current information and links to useful information. If you would like to sign up to this please email communitydevelopment@wealden.gov.uk.

Wealden Dementia Action Alliance Charter

Wealden Dementia Action Alliance have set up a charter for businesses and voluntary and community organisations to commit to working towards making Wealden dementia friendly.

Due to our current situation the Alliance will be doing this virtually.  If you sign up to the charter you will receive a logo which you can promote on your online platforms. 

If you would like further information about the charter either go to the Dementia Charter Commitment guide or email the Community and Regeneration Team

Please contact the team by emailing communitydevelopment@wealden.gov.uk for more information if you would like to be involved to any of the forums below:

  • Hailsham
  • Crowborough
  • Polegate
  • Uckfield

Community Cafe: Starting back this September. The last Thursday of the month. Come along to our cafe. Free refreshments followed by an activity. All for free. Everyone welcome. For more information please contact the Community and Regeneration Team, details below. 

Pine Grove Pictures – Dementia friendly film afternoons: Come along for an afternoon of classic movies. Entrance and refreshments are free, but donations welcome to Pine Grove Pictures. 

Tuesday 14th September – Calamity Jane

Tuesday 19th October – Top Hat

Tuesday 14th December – White Christmas

Please contact Pine Grove Pictures for more information: 01892 653823 or email enquiries@pinegrovepictures.org.uk 

Green Moments: Fortnightly starting 9th August 10.00am to 12.30pm, Bushy Wood Activity Centre, Main Road, Hailsham BN27 3LZ. As human beings we can all benefit from a connection with the outdoors. Here at Green Moments, held in the beautiful, natural environment at Bushy Wood, Know Dementia offer the chance to remain engaged with nature, meeting new people and benefitting from being outside. Our Leaders provide a variety of activities, both outdoors and indoors dependent on the weather and throughout the year. The site is easily accessible even for those with some mobility issues. Green Moments is offered to people diagnosed with dementia and their Care Partner at a cost of £2.00 per session. This includes a variety of activities as well as refreshments. For further information and to book a place phone: 01273 494300 or email: info@knowdementia.co.uk

Hailsham Community Cafe: Starting back this September. At St Wilfrid’s Church Hall in Hailsham. Everyone is welcome. Free refreshments followed by an activity each month. The second Thursday of every month, 2pm – 4pm. For more information please call Home Instead on 01323 819191

The Ninfield Health and Wellbeing group organise film screenings, indoor games and health walks in the village.

Ninfield Film Screenings – On hold: The films take place at Ninfield Memorial Hall, Ninfield, TN33 9EE. Doors open at 1.30pm, film to start at 2pm. The film is FREE but please book a seat. There will be a raffle and refreshments available.

For more information or to book your place at the next future film screening in Ninfield, please contact Jackie Langley on 01424 892422 or email jackie.langley1@btinternet.com

Polegate Memory Café: Starting back this September. Meet on the first Thursday of the month at Polegate Community Centre, Windsor Way, BN26 6QF. Everyone is welcome. The cafe is free with refreshments and an activity each month. For more information please contact Home Instead by calling 01323 819191

Sporting Memories: Starting back this September. Groups are an opportunity for older sports fans to get together to talk sport. The group encourages participation and inclusion of all, including those living with memory problems. The aim is to promote  physical and mental well being through reminiscing using sporting experiences of watching or playing – literally any sport! Thereby using sport as a means to try and combat loneliness and isolation, by giving the chance to boost confidence and make new friends. The groups meets every Wednesday 10am till 11.30am at Polegate Community Centre, Windsor Way, BN26 6QF. For more information email emma.brooke@sussexcricket.co.uk

Sporting Moments: Activities for families affected by dementia. Held every Thursday between 10:00 am to 12:30pm at Victoria Pavilion Support Centre, Victoria Pleasure Ground, Uckfield, TN22 5DJ.

For those with memory problems and their family supporter/carer. Would you like to have fun, keep fit and healthy together? Come and meet other people/families affected by this condition. Join a friendly, supportive group where you can choose from activities, such as table tennis, badminton, boccia, skittles, new age kurling and have a coffee and a chat with other people living with or experiencing this condition. Costs just £2 per person per session. For more information please contact us: Telephone: 01273 494300 or email: info@knowdementia.co.uk

Saturday Social – On hold: Supportive, safe and caring gathering for people living with dementia and other care needs, to come with their carers and family members, and socialise with others in a similar situation.

Join in the fun at Victoria Pavilion, Victoria Pleasure Ground, Uckfield, TN22 5DJ between 2pm – 4pm

For more information please call Margaret on 01825 760176 or Alison on 01825 605030

Information for carers and people living with dementia

Care for the Carers

Care for the Carers is an independent charity and the Carers Centre for East Sussex. We have been supporting and representing unpaid carers in East Sussex since 1989.

Our team of staff and volunteers can provide free practical and emotional advice – face to face, by telephone, or online. We can put you in touch with other carers, and help you navigate the range of services available locally.  We also run support groups, training and events across the county – whether you are interested in speaking up on important issues, or having some time out to relax or meet new people.

Care for the Carers represents carers and raises awareness of caring, working with local communities, organisations and service providers to build a carer friendly East Sussex.

For more information visit the Care for the Carers website.

DISC – Dementia Support

DISC Dementia Support provide the following services for carers:

  • Weekly facilitated support groups over Zoom
  • Regular carer information courses
  • 7 day a week support service via telephone, email, Zoom, text etc
  • Regular information services over Zoom

For more information, email DISC Dementia Support or call Louise on 07591 251005 or Emma on 07591 250988.

Friends against Scams

A National Trading Standards Scams Team initiative which aims to protect and prevent people from becoming victims of scams by empowering people to take a stand against scams. Take a look at their website for more information and how you can get involved.

If you or you know someone who has been scammed please contact Citizens Advice Consumer service – 03454 04 05 06

The Herbert Protocol

The initiative is named after George Herbert, a war veteran of the Normandy landings, who lived with dementia. He died whilst ‘missing’, trying to find his childhood home.

A form that carers, family or friends of a vulnerable person can fill in which is linked with Sussex Police.

It contains a list of information to help the police if the person goes missing, including:

  • medication required
  • mobile numbers
  • places previously located
  • a recent photograph

Keeping a completed form saves the worry of trying to recall the information during the stressful time of someone going missing. It also saves time for the police, allowing the search to start sooner.

When to fill in a form
Use your professional opinion as a carer or your knowledge as a family member to decide whether a person is at risk of going missing.

Hidden Disabilities Sunflower Lanyards

Wealden District Council has teamed up with Wealden Dementia Action Alliance to support a project to help people in Wealden feel more confident going into the community again.

The Hidden Disabilities Sunflower project helps those who have disabilities that are not immediately obvious to others. This could include people with learning difficulties, those living with dementia or poor mental health, as well as mobility, speech, visual or hearing impairments.

Wearing the sunflower lanyard discreetly indicates to others, including shop workers, members of the community, colleagues and health professionals that additional support, help or a little more time may be needed.

Hidden disabilities could also include asthma and other lung conditions as well as chronic illnesses such as renal failure, diabetes and sleep disorders, or indeed any illness that significantly impacts day to day life.

They affect each person in a different way, and can be painful, exhausting, and isolating. Without visible evidence of the hidden disability, it is frequently difficult for others to acknowledge the challenges faced and as a consequence, sympathy and understanding can often be in short supply.

There is no evidence required or qualifying list of hidden disabilities. If you have a hidden disability and feel that you would benefit from wearing a Hidden Disabilities Sunflower product, please do. The Hidden Disabilities Sunflower does not entitle you to anything other than identifying that you have a hidden disability and that you may need some assistance, help, or a little more time.

Lanyards are provided free of charge at the following locations. To get a lanyard for yourself, a family member or friend with a hidden disability, just pop in and ask.

Alternatively, please call Wealden District Council Customer Services on 01323 443322 for further details or email communitydevelopment@wealden.gov.uk

Use Alzheimer’s Society dementia directory to find local support services and activities for people with dementia and their carers

Find out more about adapting homes to make them dementia friendly. Make small changes to homes that will support people living with dementia to live at home safely and for longer.

Information for businesses

If you are part of a business and would like to know more about how to make your business more dementia friendly, download our Make your business dementia friendly 

The Alzheimer’s society website also has a lot of information and resources for you to use to help your business becoming more dementia friendly.

Get involved in dementia research

Time for Dementia

Is a programme working with medical students and other health professionals. The students have the opportunity to get to know a person with dementia and their family carer outside the clinical setting. Families in the East Sussex area are needed to help with this programme further details including contact details can be found on the NHS Sussex Partnership website or view the Time for Dementia – Family recruitment video. If you are interested please email timefordementia@alzheimers.org.uk

Look at important questions about why care is unequal and what this means for people with dementia in terms of their health, level of comfort and happiness – or ‘quality of life’ – and the cost of their care. They aim to explore and understand the answers to these questions:

  • What are the differences in dementia care and who gets worse or better care?
  • What aspects of dementia care lead to good and bad quality of life outcomes?
  • How are outcomes for people with dementia affected by the cost of their care, when they are diagnosed, the amount of health or social care they get, and their life circumstances?

These answers will help improve care for people with dementia and their carers. By improving care we hope to improve quality of life outcomes as well.

For more information, or would like to be involved please visit their website